fhionnuisce: (Default)
Yesterday was a hard day. Big mood dip. However, it wasn't that bad in the end.

- I'm grateful for my students, who always keep me centered in why I do what I do.

- I'm grateful for my friends, who are supportive 9 times out of 10 and put up with a lot of crap from me yesterday.

- I'm grateful for finding people to commiserate with about chronic illness-related brain-fog and the brainstorming that happened as a result. :)
fhionnuisce: (Default)
This has been one of the most amazing days of my life. Seriously, you guys.

Read more... )
fhionnuisce: (Default)
Got my arse over to LJ and answered a couple comments. Will do some more tomorrow. Also deleted all my SPN icons. Went down from around 66 to 22 icons. Heh. Not ready to move them over here, yet. I need to whittle it down to 15 for that, which is annoying. Was going to leave all the comms today too, but I just ran out of spoons.

Feel so much better with my icons cleaned up.


Med change will probably be happening tomorrow. A steroid I've been on before but not in a long time. Fun times. This change is temporary, and I need to figure out something more long-term to do... Not looking forward to that. At all.

fhionnuisce: (Default)
Finally started messing around with Pandora. Pandora is EPIC. So been reading song lyrics and such, and suddenly I miss writing poetry, even though I haven't written regularly since I was a teenager... (Yeah, typical.) Feeling nostalgic and kind of inadequate.

Really itching to get back to Jer and Doug's book. I got a long way to go in terms of my health before I can dedicate spoons to it, either mentally or physically. But I do think about them most days and slowly I am planning the little things. Doing a lot of roleplay with them as well...which is not the same as solo writing at all, but at least I feel like I'm talking to them regularly and keeping them in the forefront of my mind.

So impossibly tired. This flare needed to be over several months ago. In phone tag with my doc. Just for fun, you know... 'Cause they can't give me a straight answer about anything thanks to HIPAA. I mean, really, who else is going to call my doc about pictures of my small intestine? Ooh, better protect me from myself!

*twiddles thumbs*

At least I only feel like it's a crohns flare now, and not OHMYGOD I'M IN MORE PAIN THAN EVER IN MY LIFE and not being able to get out of bed or walk around my house. Cause that...was a whole level of special I never want to revisit. Ever. Again.

At the end of the day, I am pretty blessed. :) Thanks for being out there, as usual, guys.

Here's the song I was gonna post on Thanksgiving before Jer got obsessed with little lego people with lightsabers and took over my brain.... *grin*

fhionnuisce: (Default)
Feels like I haven't posted in ages. So I'll just give a summary of life right now:

- Packages went out. If I sent you a package, you owe me approximately $7 shipping for mailing cost and packaging. I will get reminder messages out about this this week.

- Still in the phase of my illness where a million tests are being run, but I *think* that tomorrow should be the last. Need new meds soooooooo goddamn much. Please, please, please, nice doc lady, pleeeeeeease let me get new meds after this week.

- Housing situation asplodey, but I am oddly at peace now that I am in a "speak when spoken to and offer little information" phase with my roomie. We'll see when she catches on.

- Short trip home for Thanksgiving.

- Tried a touchscreen phone for the first time, brought it home with me... It makes me feel gimpy in a bad way so I am returning it and going back to a phone for apparent luddites.

- Got a new computer. It's awesome.

- Lots and lots of exhaustion lately owing to the health shit. Lungs on fire. Gut on fire. Acid reflux on fire. Lots of fire. Slowly disentangling the mess after many years of self-neglect and medical ignorance.

- Trying to think about what to do about this journal. If you're here, I don't wanna lose any of you. But [personal profile] fhionnuisce has got to go. It's not been a good name for me in a long time, and it belongs to fandom now. (Speaking of things that belong to fandom? So happy that stuff is on its way to other people.)

Last time I parted ways with these same exact people... I created a journal called waterspiderweb and I swear it almost stuck but I just...hate switching journals. So I'm not going to do that, but this name does have to go. What the hell do I do with that?

Anyone with any name input whatsoever, feel free to shout in the general direction of this post.
fhionnuisce: (Default)
Can has Creation tickets.


Oh! I actually have news! Went to the doc today for my physical and the thing that I thought might be a fucked up bone is really a VERY unhappy, very tight (my assumption) ligament in my foot. What this means is: this really sucks hardcore, but at least it is standard issue CP/wheelchair user stuff. A shattered bone would be worse, I feel.

Of course, now we are talking about seeing orthopedic surgeons over it, which ... ugh. (My last surgery was at age 12 and I kinda would like to keep it that way but on the other hand... well. Whatever. I have other doctors to see, though, before I put that all on the table.)

So yeah. I was just kind of relieved that the thing going on with my foot is something I UNDERSTAND from years of similar problems (and a surgery to prevent this very thing way back when I was 7. Oops. CP gets worse as you age... Maybe stopping having any support for people with CP past the age of puberty is a bit of a fucking problem, society, but whatever.)

Hurts like a bitch, though, and makes for a lot of swelling.


fhionnuisce: (Default)

July 2017



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