fhionnuisce: (Default)
From my Tumblr, which, at this point, I feel comfortable sharing with you all:

http://fhionnuisce.tumblr.com

Last night I watched 8, the play about the Prop 8 trial which has previously been suppressed from the media. Prop 8 is on its way to the supreme court, and with the contents of the trial now available free from YouTube in the form of this play, a hell of a lot more people are going to be *truly* informed about this issue, and I really have high hopes.

So why did it totally make me crash after I watched it? Why, if I’m a GLBT rights supporter, do I not feel some sort of accomplishment from this?
There are a couple possibilities: I’m a member of the GLBT community, but for various reasons I feel disenfranchised from it. I don’t feel my community around me. And why is that?

I’m witnessing a successful human rights movement which I am only tangentially a part of. I sign petitions. I’ve raised funds for groups like HRC, both personally and professionally. I follow this issue more religiously than any religion.

But it’s not mine.

I’m GLBT but the movement isn’t mine.

At the end of the day, I may not be gay or lesbian. But I’m disabled, and I don’t have marriage rights either.

Sure, I put a brave face on it. Helen Mirren used to say that marriage and turnips were not for her, because she had no interest in either one. Well, now she very eloquently supports gay marriage because she’s realized that A) marriage was a good choice for her after all, and B) she has that choice, and so should everyone.
People with disabilities are fighting a lot of battles. We’ve got a 70% unemployment rate and a 1 in 3 sexual abuse rate and that’s what gets reported. When we’re not even seen as sexual, or when our worth to society is so in the toilet that 70% unemployed just is, that sexual abuse and neglect and so many other things just are, how can we really start thinking about our marriage rights?

I don’t know, but I’m thinking about them, and I’m tired of being depressed. I’m tired of telling myself I’m uninterested in marriage BECAUSE I HAVE TO. I don’t know what the hell I will get done. My people have a lot on their plates OTHER than marriage rights. My people are just trying to exist, to get through days of pain and be seen as human beings. But they are my people, and it’s time for me to start to fight for them. I don’t know what I’m going to do or who I’m going to do it with, but I guess that’s why I’m bringing this to tumblr and not another one of my blogs. So go ahead and spread the word that at least one person who’s put some muscle behind this GLBT movement is willing to do something for people with disabilities. Maybe in my lifetime the couples I know living outside of marriage for fear of benefits getting cut or medical services being suspended won’t have to wait in the shadow of the supposed sexlessness of people with disabilities.

Happiness is when what you think, what you say, and what you do are in harmony. - Ghandi

If those words and ideas can propel Ghandi, they can propel me to action.

I don’t know what I’m going to do, but I’m ready and willing to start fighting. I want to know who else is too. Reblog or like this, and I will take notice. Spread this, Internet. I’m ready to get moving. Any progress is progress. Every little bit counts. What’s going to happen now?
fhionnuisce: (fangs)
I am posting the following without a cut, because it is that important. It is long. Please read it. Think on it. Do what you can.

I'm writing to let you know of something terrifying that is happening in our government, somewhat in the background, and under the radar of many people. Medicaid is in serious danger, and that is how I, along with millions of people with disabilities, get medical equipment and care. I am far from the most needy but I am one of millions of people in the same boat or worse.

Please start following this story in the news, and don't let it go. If you can, google for "independent living" in your state, find your center for independent living's phone number, call them and ask how you can help. Tell them you have a disabled friend/family member/colleague/anyone, and you are concerned and want to help.

You guys know me, and know I do not make things up, or pass around fake forwards. This is not a joke. This is real life, and it is happening in the background while we are distracted by many other disheartening events. I understand that there is a lot going on, and this too will be something hard to swallow. If you doubt the validity of any of the information written in the article I've enclosed below, please consider these personal stories as well. This is effecting real people, every day, and continually more and more of them. These are your friends, aging parents, aunts and uncles, loved ones, people you know from around town. Whoever it is... you know someone who will be effected by this in some way. These are the stories of two of my friends currently going through the hell that is medicaid cutbacks:

My friend Christina, the one I've known since I was 5 years old, my best friend in elementary school, was kicked off of Medicaid as a result of cuts. She "no longer fits criteria for medical need." The criteria are not available for her to review. She has been paying out of pocket expenses on perscription drugs, PT, any doctor's visits, and still living on her SSI payment... We haven't even gotten to food, rent, or utilities.

My friend Meg can't get her perscriptions filled by medicaid, and that's for the drugs she's been perscribed. Plenty more have not been perscribed because they will not be covered. As such, Meg's panic attacks and depression, which are as disabling as mine if not moreso, are not being treated AT ALL right now. Meg is fortunate in that she has found a clinic which keeps her in medical supplies. Medicaid also regularly decides her scheduled appointments can't happen, and her doctors are not all getting paid to see her. She is essentially being seen for free because there is no other alternative and she has a good doctor or three.

Why does this happen? Because of medicaid cuts. And they just keep coming and coming, guys. Federal and state cuts, proposed, ratified, and put through. Please read this article thoroughly and do what you can. Contact the people you know, get the word out, and don't let this go. This is not a story of the week. This is a long battle that we as disabled people or their loved ones have to fight. Our health, our independence, our families and friends, and our lives as people with disabilities depend on it. And I know you know this has not gotten much coverage. They don't want people to know, or think about it. I will admit that I have often swept such things under the rug or into the back of my mind. I am not perfect either. But I know you guys know me, or Meg, or Christina, personally.... You may know any other disabled friend or relative. It doesn't matter. Whoever it is, think of them, and what it would mean to you if they were refused care and medication on an arbitrary basis, or forced to give up their independence because they lost their personal care attendants or can only get medication in a nursing home.

Think about that, please, and read the article below. Please support us by doing anything you can to get the word out, and stop people from sweeping this under the rug. I know you can and will help me. Even if it is just by telling the people you know, and keeping on telling them it's a big deal.

Thank you.

Erin Lewy
--

Marta Russell -- The Medicaid Kill Off

ZNet Commentary
The Medicaid Kill Off September 04, 2005
By Marta Russell

Bush and the Congress slashed $10 billion from the Medicaid budget for this
coming year. Medicaid is the primary public health care program for
impoverished persons that serves over 53 million people.

The cut is clearly an attack on poor people and it may wind up killing
disabled and chronically ill persons before all is done. It is also a strike
from those segments in our society who wish to dismantle the entire Medicaid
system and there are undercurrents that will force a rollback of disabled
people's civil rights.

Even before this $10 billion slicing goes into effect, governors and state
legislatures in states such as Mississippi, Missouri, Minnesota, and
Tennessee are cutting back on Medicaid to reduce costs. Maneuvers include
restricting eligibility, paring down the rolls by kicking people off the
program entirely, eliminating or reducing "optional" benefits such as
prescription drugs, wheelchairs, diabetic testing supplies, rehabilitation
services, even oxygen, initiating co-payments for services including drugs,
and reducing payments to doctors and hospitals.

Privatization or subcontracting oversight of programs is also being promoted
in several states, such as Florida, though there is no reason to believe
this will reduce costs, rather it is an ideological shift to the right -
more "free market" healthcare. Placing private corporations in the middle
between citizens and government mostly adds more overhead. Then, of course,
those corporations' goal is to make profits taking dollars from going
straight to patient care.

In the middle of all this are disabled people fighting for their right to
live in the community. As I write, significantly disabled protesters in
Tennessee have occupied the Republican governor's office at the Capitol for
over 3 weeks to stop cuts to their state Medicaid program (known as
Tenncare). Gov. Phil Bredesen has responded by saying: No Food or Water.

Gashing Medicaid promises to roll back the clock on disabled persons who
nearly always were locked up, warehoused, with no option to live in the
community before direct (in-home) support services became a part of some
states' Medicaid program. Present rollbacks to Medicaid are undermining
disabled people's civil rights - the right to be free of institutionalized
"care" (see E.W. and L.C. v Olmstead Supreme Court decision outlining the
right for services to be delivered in the "least restrictive" setting).

Tactics like denying medications and treatments force disabled persons into
nursing homes to get services they must have to survive. Nursing homes have
proved to be costlier than in home services. Why this fact is not a part of
every state's Medicaid budget discussion is a grave oversight - but then we
know the nursing home lobby spends tens of thousands to protect its turf.

In many cases being placed in a nursing home is no less than a death
sentence. Some members of ADAPT will tell you they'd rather die than go into
a nursing home. They know - first hand - what goes on in them.

The governors say their budgets can no longer sustain the growing Medicaid
program. Rising Medicaid costs are often attributed to the economic
downturn. In part this is correct because as people lose their jobs they
generally lose their healthcare and this increases the need for Medicaid. As
more people lose their jobs (and cannot afford Cobra premiums - their
healthcare) they flock to Medicaid.

There are other factors. Employers such as Wal-Mart, the largest and most
profitable retailer in the U.S., does not provide healthcare for most of its
employees. Instead the corporation sends workers to the local Medicaid
office to apply for public healthcare.

Private insurers have increased their premiums to unaffordable levels for
middle and low-income people forcing them to turn to Medicaid when they can.
Yet another reason is that prescription drugs have increased in price by
double digits over the past years driving up Medicaid costs all across the
nation.

Not surprisingly, the Republican governors have struck the first blows
against the most vulnerable sections of society. Gov. Haley Barbour of
Mississippi and former chairman of the Republican National Committee, Gov.
Matt Blunt of Missouri, Gov. Phil Bredesen of Tennessee, and Gov. Tim
Pawlenty of Minnesota supported slashing this vital program rather than
raise taxes or insist that President Bush provide more Medicaid dollars
(federal government typically pays 57% of the program's overall costs) -
which Bush could do if there was the political will. Perhaps a reminder is
due here that Bush, while at Harvard Business School, said that he opposed
Medicaid, Medicare, and Social Security. It is no fluke that we see this
attack on Medicaid now.

It is optional whether to cover some disabled persons or not under Medicaid
rules - a pure piece of bad welfare state planning if ever there was one.
The people who are covered unconditionally are children, pregnant women, and
blind people. Gov. Haley Barbour's effort in Mississippi to reclassify
65,000 Medicaid recipients as ineligible "poverty-level aged and disabled"
was stopped in court last year. But new restrictions on medications have
been enacted in Mississippi that will limit the number of prescriptions a
person on Medicaid receives to five beginning next year. Only two name-brand
prescriptions are allowed. While saving the state money, the rule change is
likely to seriously impact the lives of 80,000 elderly, mobility impaired,
deaf, blind, "mentally ill," diabetic, and cancer-ridden recipients. This
type of rollback does not deal with the outrageous prices placed on
medicines by drug manufacturers nor other kinds of healthcare inflation.
Instead it forces cutbacks that are damaging to recipients' well being. In
Missouri, Gov. Matt Blunt has scheduled 90,000 Medicaid recipients to be
severed from the state rolls next year. The cut was Blunt's solution to
balancing the budget without increasing taxes, despite widespread public
disapproval.

"The cuts we face sent a big refund back to the feds because they won't
have to pay out matching funds for Medicaid," says one advocate from
Missouri.

The White House had people on the ground in Missouri when the state was
working on ways to end Medicaid there according to one source.

Gov. Blunt's stated plan is to end Medicaid in four years.

"It could be a brutal cautionary tale. We should watch for other states to
try to enact some of the same kinds of change," my source warned.

Since 1996 the costs of prescription drugs to the Minnesota Medicaid program
have skyrocketed. Gov. Tim Pawlenty is overseeing reductions of services
provided by MinnesotaCare. He is in the process of slashing Medicaid costs
by reducing services and increasing fees for those enrolled in the program.

Under the governorship of Phil Bredesen in Tennessee, people on Medicaid are
in a desperate situation. Gov. Bredesen is executing the cruelest slashing
of public health coverage in the history of the nation. According to ADAPT,
every day around two thousand people enrolled in TennCare, the state
Medicaid program, receive letters of termination or reduction of
benefits.

Hundreds of thousands of disabled and chronically ill Tennesseans are living
in fear because of Gov. Bredesen's decision to strip them of the only health
care they have. Many Medicaid beneficiaries have disabilities and virtually
all can't afford to pay for their health care out of their disability
checks. The protestors are still in formation in their sit-in at the Gov.'s
office. They are there to try and stop the Governor from making massive
cutbacks to TennCare that would dump over 200,000 people off services.

Among the people who will be deeply harmed by the cuts are 100 individuals
who use ventilators. Up until now they were getting services in the
community but the Gov.'s plan shuttles them into nursing homes. This is a
clear swipe at their civil rights: a violation of the Olmstead Supreme Court
ruling on "least restrictive environment."

ADAPT confronted Gov. Bredesen.

"So you are saying," asked Randy Alexander of Tennessee ADAPT, "you will
institutionalize people because they have a disability?"

"Yes," replied Bredesen, "I care about them, I'm not cutting their services
I'm going to provide their services in a nursing home."

"We are talking about basic human rights here," said Alexander before the
Governor could leave, "you have admitted today this state, is willing to
imprison people simply because they have a disability."

This is only the beginning. Ten billion more to be taken from Medicaid next
year.

A record deficit, coupled with right-wing ideology, and overextended empire
underlies the demolition of Medicaid upon which these disabled people's
freedom rests.

The current impetus is towards less restriction of pharmaceutical and
insurance corporate profits, a rollback of government programs for the
people, large tax cuts to the rich, and less health care security for the
working class. The endless war Cheney spoke of will feed the "defense"
contractors and the "rebuilding" company Halliburton, Bechtel, and Kellogg,
Brown and Root. It will increase military spending needed to maintain the US
Empire -- all of which will continue to increase the already over-stretched
deficit.

Bush's term will be marked as one that killed tens of thousands of innocent
Iraqis and others in territories the US has invaded, killed over 1800 troops
who should not have been sent overseas in the first place and now, given
time these factors will kill off Medicaid and innocent poor people with it
in the US -- if the people do not arise and fight this momentum as though
their life depends on it " and it does.

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